In tandem to Santiago to raise awareness: Taking advantage of Holy Week, Mateo Díez and David Macho, accompanied by José Félix Quintanar, embark on a unique challenge: traveling the Camino de Santiago in tandem to raise awareness of Hereditary Retinal Dystrophy, a rare disease that has affected David since his childhood.
David, 38 years old and an ONCE user, has not allowed his Usher Syndrome type 1, a genetic disease associated with deafblindness, to limit his dreams. Together with Mateo, an experienced pilgrim with three Caminos behind him (two on foot and one in tandem with another blind friend, Alfonso Muñoz) and the logistical support of José Félix, they have set out to complete the 13 stages to Santiago de Compostela.
“This journey is much more than a personal challenge,” explains David. "It is an opportunity to raise awareness about retinal dystrophy and raise funds for its research."
Mateo, an ONCE volunteer, agrees that the experience of the Camino, added to the challenge of the tandem, will be a perfect setting to make this rare disease visible.
"Every kilometer we pedal will be one more step towards a future with more scientific advances and a better quality of life for those who suffer from this disease," adds Mateo.
The journey, which began this [Date], can be followed through social networks, where they will share their experiences and seek the support of the community to achieve their solidarity goal.
